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And that distribution and access not only helps us create a very successful, very large business, but getting back to the original intent and the aspiration of why I created this in the first place," he said

Affected stakeholders may want to push legislators to codify a permanent solution during the next cycle, recognizing that the RPD PRV Program has existed for nearly 15 years and has become an integral part of financing calculations for innovators and investors in the rare pediatric drug space

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